Parental Response to Illness

As with the diagnosis of different chronic illnesses, a diagnosis of hemophilia means that that oldsters must handle the loss of their hopes for the “good” child. Support ought to be provided to parents, thereby helping them in their efforts to resolve their feelings of loss. This can help facilitate their acceptance of the diagnosis and modify their expectations and lifestyle to adapt and care for their son. Several families progress through a series of stages in dealing with such a diagnosis.

Parents usually react initially with shock, disbelief, or denial. Acceptance of the diagnosis follows and several folks, especially mothers, feel guilt at having “given” this disorder to their baby. Parents are sometimes confused and frightened for their child and will expertise feelings of helplessness. They typically worry regarding
• The kid’s future
• The kid’s development over the lifespan

These are all traditional responses, unless they are excessive or prolonged. Oldsters might need support to recognize that individuals cope differently which this, too, is traditional. One parent might acknowledge the diagnosis and feel guilty concerning it, whereas the opposite would possibly still be in denial. Several parents typically feel isolated by these feelings. It is useful to acknowledge the “normality” of all such reactions. Ongoing education will facilitate to bridge gaps in parental information. Counseling and steering, either individually or in groups, can help parents throughout this time.